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We have been touched by all of the comedians and other performers who have given of their time to perform at all of our "Cool Comedy-Hot Cuisine" benefits over the years, which take place annually in New York and every other year in Los Angeles, San Francisco, and now Las Vegas.
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Thanks to the amazing research we fund at John’s Hopkins, Stanford and UCSF, new drugs and new therapies have been developed, helping thousands of those struggling with this sometimes fatal disease.Īfter the loss of my sister, I have had the good fortune of meeting hundreds of scleroderma patients who I feel connected to on a deep level - as though it’s some sort of horrific rite of passage to be in “this club.”
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Since that time, the Scleroderma Research Foundation has raised over $35 million dollars. So, just three years after I found out what ‘scleroderma’ was, my sister was sitting in the audience at the benefit, now actually diagnosed with this orphan disease. (Apologies, but that’s a long time for me to be serious without a shot of gallows humor to get me through the pain of discussing it.) The more you experience, the more you tend to believe, “there are no accidents.” Except occasionally in your pants. I have since hosted "Cool Comedy-Hot Cuisine" over 30 times. It was such a moving night for me that I personally promised Sharon that I would be there the following year. The first year I went, Ellen DeGeneres and Rosie O’Donnell performed as well. Savenok / Getty Images for Scleroderma Research Foundation With Andy Cohen at Cool Comedy - Hot Cuisine, A Benefit For The Scleroderma Research Foundation at Carolines On Broadway on Decemin New York City.
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Robin returned for a total of five times, helping Sharon to raise millions for research programs and the Centers of Excellence at Johns Hopkins, Duke, Stanford and UCSF, among other universities and major medical institutions. I was a performer and later served as its host. John Stamos, George Lopez, Ray Romano, Dave Chappelle, John Mayer and Robin Williams were among the friends who helped him.The beautiful, generous Robin Williams was the first performer to stand up for this cause. Through laughter and star power, Saget raised more than $26 million for the Scleroderma Research Foundation. "It's so healthy to laugh, and I'm out there doing it and I know it's healing for people." "Humor is the only way my family survived," he said. You know, and being an actor, that's a very important thing if your hair gets out of place."Įven as he talked about the death of his sister, humor came in.
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"And it, I don't know how to explain it, but it felt like, I mean, I'm going to go all 'woo woo' here, but it felt like the soul going past us, literally felt it. "We were all in the room when she let out her last breath," Saget said. Her symptoms completely resolved after she started taking medication to suppress her immune system.īut when Gay Saget was diagnosed, much less was known about the disease and how to treat it. "I couldn't hold the small dental instruments to do root canals and my hands were swollen. My face started to swell up," Adams-Williams said. They were heavy as I was going up the steps.